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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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dorat wrote:Oh Jenni, what a shame! You were actually feeling better on the cimzia to start with! I bet that surprised you when the nerve conduction studies had not been booked!  Pleased to hear the GOB is still working but praying hard for the rest of you to recover. Love and lots of hugs, Doreen xx That is the problem Doreen, I feel FANTASTIC RA wise and in myself, bit tired perhaps the anemia is still there, but otherwise so very well in myself. The RA has been treated and that is so lovely to have a few wks relief.
but I cannot tolerate it again.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Sending more hugs Jenni.
One day there will be something you can tolerate, there HAS to be!
Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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So disappointed for you Jenni - it is really hard being forced to choose between the lesser of 2 evils. Glad you are home - Take care XX Ailsa (Glad your 'gob' is still going strong!)
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Jenni, glad to hear you've escaped, lord knows you and I have had enough of hospitals! You were doing so well, however, without the new drug, I hope that the RA stays calm and lets you have some quality of life, as for the other stuff going on, looks like your consultants' need to have a meeting to thrash out what is going on, and come up with an alternative treatment plan. Hang on in there girl, sending you lots of hugs and well wishes.
much love,
Barbara
XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Jenni
I am so sorry that you have been having such an awful time again. It is such a shame about the Cimzia. Let's hope your doctors are able to sort out your other problems so that you can restart the Cimzia.
Take care
Jackie
xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009
Posts: 90
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Like Jackie says, I do hope, you will be able to start the Cimzia again, when this latest attack of neuropathy hopefully is helped by a higher dose of Gapabentin. It seems a tragedy to me, if you have to abandon Cimzia, when it has made such a difference to your quality of life, being the first drug, that has really helped your RA.
Have a restful week-end. You must be exhausted.
Merete
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Jenni
I really hope that matters with your neuropathy can get sorted, so that hopefully you can go back to cimzia.
Thinking of you Julia x
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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Just catching up, Jenni.
Hugs and good thoughts for Monday. How are the rest of the family doing now? I was thinking that with school holidays, Gemma might be even more missed. Richard settled into the newer job?
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Jenni, Still catching up since missing two or three days - so sorry about the cimzia. That must be yet another blow for you. I really hope something else comes along before too long. Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 3/17/2010 Posts: 42
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Dear Jenni - sorry you are having such a rough time. I hope you start to feel better soon.
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Oh Jenni- just when the cimzia was helping. Good that you're home though, and being looked after.
Sending you much love
Maria x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Jenni, Gutted for you to hear the Cimzia has caused you problems after you were doing so well. I do sincerely hope there is something else you can take which will give you as much relief as you have had. Glad to hear you are home again with you family, enjoy your time together and try to stay positive. Thinking about you, take care. Love Lorna xx 
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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Hi Jenni
You really do go through the worse things. I hope you are feeling better soon.
Sending lots of hugs for you and the family.
Love Shirley x
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Rank: Advanced Member
Groups: Registered
Joined: 1/14/2010
Posts: 118
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hello Jenni so sorry to hear you have been unwell again and will no longer be able to take that medication. I am sure there will be something else that you can take soon. thinking of you Love Melanie
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Rank: Advanced Member
Groups: Registered
Joined: 8/26/2010
Posts: 30
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Hi Jenni I am a recent newbie and I feel for you I am having neuro issues after my hip replaced i got drop foot and have had nerve cond tests and they are ok and have come back , i may get the use of my ankle back but they cannot guarentee!!!! Getting medication as to be sooooooo right with this utterley dispicable disease and if you have other complication then even more so.
I do hope things improve for you and i am sending you lots of hope and love from me and I am sure the rest of the forum.
Take it easy Jenni
Best wishes
Dawn x
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